Understanding that Keratoconus is a progressive disease and causes stress on the patients should be important to your health care provider. The use of our vision is something we often take for granted until something like this happens. Although we learn the signs, symptoms, and treatment for Keratoconus the medical side of the disease is not the only area we need to manage.
As human beings we are emotional. Our feelings and emotions can play a big part, especially if the disease progresses and how we take care of our disease. Learning to cope with Keratoconus and not let it break us down in our daily life is equally important. We need to know how this can effect us at home and where to look for help.
Below are a few tips to help keep you focused and cope:
Tip 1: Remember we are not alone- There are several places that provide support Online and off to Keratoconus patients. The American Keratoconus Association is a great resource and provides lots of support and information on this disease. Also the Global Keratoconus Foundation provides support groups and activities to help Keratoconus patients. Turning to family and friends to support you and talk to you also helps relief the stress of this progressive disease.
Tip 2: Enjoy yourself- Spend some time pampering yourself. Doing the things you enjoy doing. If you aren’t as able to do the things you have always done…remember you can always try some new ones. Finding activities to occupy your time will help you focus on the happy times and deal with your situation with a clear mind….remember you must not dwell on what can’t be changed.
Tip 3: Participate in your treatment- One thing we take for granted is that we can be our own advocate. You can learn more about your options, ask questions, and decide who your doctor is going to be. The important thing is to make sure you are comfortable with them. That they have your best intentions at heart.
Know that you are not alone. That there is help for you and others going through the same things you are. Reach out for them…share your experiences you maybe able to ease someone else’s pain while you are at it. Keratoconus is progressive but there is help and remember to take it one day at a time!
For more information visit the American Academy of Opthamology